Endometriosis: Key Information

Living with Endometriosis can be incredibly debilitating. We encourage anyone suffering to speak to their people manager and/or HR contact about how work and studies can be managed most effectively during painful times of the month.

Endometriosis is a prevalent condition in the UK, affecting a significant number of individuals assigned female at birth. Approximately 1 in 10 women of reproductive age are affected, equating to over 1.5 million individuals nationwide. Despite its prevalence, endometriosis often remains undiagnosed for extended periods. On average, it takes about 8 years and 10 months from the first GP visit to receive a diagnosis.

What is Endometriosis?

Endometriosis is a chronic medical condition in which tissue similar to the lining of the uterus (called the endometrium) grows outside the uterus. These abnormal growths, often referred to as endometrial implants or lesions, can occur on the ovaries, fallopian tubes, the outer surface of the uterus, and other organs in the pelvic region. In some cases, they can spread to other parts of the body.

Key Symptoms

  • Pelvic pain: Often severe, especially during menstruation.

  • Heavy menstrual bleeding or irregular periods.

  • Pain during intercourse.

  • Pain during bowel movements or urination, especially during menstruation.

  • Infertility: Endometriosis can affect fertility, although not all individuals with the condition experience this.

  • Fatigue, bloating, nausea, or diarrhea, particularly during periods.

Treatment Options

Treatment depends on the severity of symptoms and may include:

  • Pain management: Over-the-counter or prescription pain relievers.

  • Hormonal therapy: Birth control pills, hormonal IUDs, or other medications to suppress endometrial growth.

  • Surgical intervention: Laparoscopic surgery to remove endometrial tissue or, in severe cases, hysterectomy (removal of the uterus).

  • Lifestyle changes: Diet, exercise, and stress management can sometimes help alleviate symptoms.

The economic impact of endometriosis is also substantial, costing the UK economy around £8.2 billion annually in treatment, loss of work, and healthcare expenses.

If you are experiencing symptoms of Endometriosis, it’s essential to take proactive steps to manage the condition and seek a proper diagnosis.

How to seek a diagnosis

Keep a Symptom Diary:

  • Note the type, severity, and timing of pain.

  • Record menstrual cycle details, including flow, irregularities, and associated symptoms.

  • Include any other symptoms like fatigue or digestive issues.

Consult a Healthcare Professional: Schedule an appointment with your general practitioner (GP) or a gynecologist. Request appropriate diagnostic tests.

Explore Treatment Options:

  • Pain relief: Over-the-counter or prescription medications.

  • Hormonal therapies: Birth control pills, hormonal IUDs, or other medications to suppress endometrial growth.

  • Surgery: Laparoscopic removal of lesions or other interventions for severe cases.

  • Lifestyle adjustments: Diet, exercise, and stress management can sometimes help alleviate symptoms.

Find out more at https://www.endometriosis-uk.org/

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